It's been rough...

Last week was a rough one.  The boys were dealing with steroid rage and lots of leg pain.  Thankfully Bob had taken the week off so we were able to help them in any way we could.  By Thursday they started laughing and playing again.  They are still experiencing leg pain but its getting better everyday and the effects of the steroids have started to wear off.

We knew this treatment was going to be rough so we made the decision to have Zoe spend some time in Nebraska with family.  She's having a blast playing and will get to celebrate her birthday tomorrow with them.

The boys have a doctors appointment tomorrow and if they make counts then they will start the second phase of delayed intensification.

The little kid I asked you to pray for went to be with the Lord yesterday.  Please keep his parents in your prayers.

Zane sleeping.

Zane had a really rough night were the only way he would sleep is if I held him in a sitting up position.

Zac sleeping.

Making an omelet.

My sweet boy.

Thursday morning smiles.

Waiting for daddy for come back home.

Zane

Zac

Eating cookies.

Making a salad.

Matching shirts.

Making a pizza.

Tuesday's Appointment

On Tuesday when Zac had his port accessed he started holding his left side again.  And once the first chemo was administered he started crying in pain.  That landed us back in radiology for a dye test.  They wanted to make sure the line wasn't leaking.  Everything looked good and they couldn't see any leaks.  So we went back up to the clinic so he could get his second chemo of the day.  We go back tomorrow for another chemo and I'm hoping his left side won't hurt.

We also learned that one of the kids we saw a lot in clinic was placed on hospice that day.  Will you please join me in praying for a miracle for this sweet child?

The boys in the radiology waiting room.

My sweet boys.

Playing

End of Interim Maintenance/Start of Delayed Intensification

The boys have finished their interim maintenance phase and are on day 15 of the delayed intensification phase.  This phase is a combination of induction and consolidation.  The started taking steroids again and I forgot how rough that was on their little bodies.  We have been dealing with steroid rage times two.  Its been a little challenging but we are getting through it.  After this phase the boys will enter the maintenance phase were they will take a chemo pill daily and go in for treatment once a month for three years.  

During their interim maintenance phase we took it pretty easy and enjoyed being able to go places without having to worry about their counts.  I was also able to do another deep cleaning for our house in preparation of the phase we are in now.  

I have so much I want to share but every time I sit down at the computer words fail me.  

Making Christmas in July cookies

At the fair.

She liked all of the rides, especially the ones that spun.

It's not a fair without some cotton candy.

Looking for turtles.

Taking a walk.

Zane put jelly beans in his soil in order to grow healthy jelly beans.

Summertime fun.

"Mommy I need to work now."

Waiting in the playroom at the clinic.

Ready to give her brothers their checkup.

Splashing

Who needs a swimsuit when you have a dress?

Playing at the clinic.

Hello

She finally went down the slide.

A summertime treat.

Zane discovered the selfie.

Checking out the display in radiology

Zac had to have a X-ray of his side.  Something was bothering him and they just wanted to make sure it wasn't anything to serious.  It only bothered him the day of his doctors visit and the X-ray didn't show anything.

She has taken over my bible.

Do you have the time?