Thursday, March 31, 2016

Day 10/Day 3 (Consolidation)

Zane started Consolidation on Tuesday.  Zane had the early appointment on Tuesday since he was having the chemo that requires the hydration requirement.  We got their at 7 and he got his labs, office visit with his team, started getting hydrated before going to the OR for his lumbar puncture, and about an hour after we got back to the clinic he met his hydration requirements.  He got his chemo, hydration for two hours afterwards and they he also got some blood since his hemoglobin was low.

Zac got to sleep in since he wasn't scheduled to arrive at the hospital until 11:15.  However, as I was getting ready to take Zane to the OR the nurse told me an earlier spot in the OR opened up and if Bob could get him to the hospital quickly they could squeeze him in.  By the time Zane went back Bob was at the hospital with Zac.  I was able to join him for labs, office visit, and then headed to the OR with him.  As Bob was checking in Zac for his lumbar procedure I was being paged to recovery for Zane.  Zac's hemoglobin was also low, so after he procedure he got some blood and then he received his chemo treatment.

The boys also ended up entertaining the nurses and doctors in the clinic.  Zac acted out scenes from Frozen and Zane was a little comedian.  The doctors and nurses loved seeing their personalities come out.  It was a long day and the boys did great.  We didn't leave the hospital until after 6pm.

Zane checking out his TMNT egg while waiting for lab results.  

Eating his carnitas from Chipotle and cookies after is procedure.   He hung out in the wheelchair the whole time we were in clinic.  He was ready to make his getaway. 

Zac adding stickers to his iGuy.

The finished product.

Zane with his Easter basket.

Today was a great day.  Zane has been pretty weak from the treatments and hasn't been able to walk.  His legs got so weak that he would crumble to the floor.  This morning I took him downstairs and after eating his breakfast he said he want to walk.  He was able to take a few steps without falling.  Then with my aide he was able to walk to the kitchen where he wanted to make muffins.  Baking is a passion of his and the last time he had any energy to bake was on March 1st.  We made some blueberry muffins and then he wanted to go into the office and play with his trains.  He hasn't played with his trains in weeks.  Zac spent the majority of the day playing with Zoe in a box.  They played the big bad wolf with grandpa and had a picnic in the box.  Then tonight at bath time the boys actually played instead of hurrying out of the tub.  They have not been liking bath time since they got their ports and it was so nice to see them playing like they used to.

Zane adding the whisk attachment to the mixer.

Folding in the blueberries.

Zac in the box.

The boys in the tub playing.

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